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SEPTEMBER 2010  
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Links to other websites

The SCD support group cannot be held responsible for information obtained from these links

The stars** point towards websites which may be useful to those searching the subject of SCD, the conditions associated with it and support possibilities.

Drugs to avoid with long QT www.qtdrugs.com

and Arizona CERT www.torsades.org

 

Irish Links

Adelaide & Meath Hospital Tallaght www.amnch.ie

Barnardos www.barnardos.ie

The Dublin City Coroner's Court www.coronerdublincity.ie

Department of Health and Children www.dohc.ie

Health Promotion Unit www.healthpromotion.ie

Health Service Executive www.hse.ie

Heart Children Ireland www.heartchildren.ie

** Heart House Screening Clinic www.materfoundation.ie

Irish Cardiac Society www.irishcardiacsociety.com

Irish Health www.irishhealth.com

**Irish Heart Foundation www.irishheart.ie

**Irish Hospice Foundation www.hospice-foundation.ie

Irish Red Cross www.redcross.ie

Irish Sudden Infant Death Association www.iol.ie/~isidans

Lost Futures www.lostfutures.ie

Marfan Syndrome Support Group Ireland www.marfan.ie

Mental Health Bereavement http://uk.dir.yahoo.com/Health/Mental_Health/Bereavement/

Pre-Hospital Emergency care Council www.phecc.ie

The National Centre For Medical Genetics www.genetics.ie

The Bereavement Counselling Service ( Volunteers) www.bereavementireland.ie

**The Cormac Trust The Cormac Trust

The Robbie Simpson Trust Fund www.robstrust.com

**West of Ireland Cardiology Foundation www.croi.ie


UK Links

**Arrhythmia Alliance (A-A) - www.arrhythmiaalliance.org.uk

British Cardiac Patients Association (BCPA) - www.bcpa.co.uk

British Cardiac Society www.bcs.com

**British Heart Foundation (BHF) - www.bhf.org.uk

British Pacing & Electrophysiology Group (BPEG) www.bcs.com

**Cardiac Risk In The Young ( CRY ) - www.c-r-y.org.uk

**Cardiomyopathy Association - www.cardiomyopathy.org

Child Bereavement Trust www.childbereavement.org.uk

Compassionate friends www.tcf.org.uk

Department of Health - www.doh.gov.uk

Education For Health -www.educationforhealth.org.uk

Fainting - www.fainting.com

Genetics Oxford www.oxfordgkp.org

Genetic Interest Group - www.gig.org.uk

Gene Park Wales www.walesgenepark.co.uk

ICD support group beehive.thisisstaffordshire.co.uk

** Long QT www.sadsuk.org

Marfan Association - www.marfan.org.uk

Medworm www.medworm.com

National Heart Forum - www.heartforum.org.uk

NHS Direct ( England , N Ireland & Wales ) www.nhsdirect.nhs.uk

NHS Hospital list - www.nhs.uk/england/default.aspx

NHS Health Scotland - www.healthscotland.com

National Institute for Clinical Excellence ( NICE ) - www.nice.org.uk

**Sudden Arrhythmic Death Syndrome Trust (SADS UK ) - www.sadsuk.org

**Syncope Trust And Reflex anoxic Seizures (STARS) - www.stars.org.uk

 

European Links

European Society of Cardiology www.escardio.org

European Heart Journal www.eurheartj.oxfordjournals.org

European Heart Network www.ehn.org

 **QT Syndrome.ch   www.qtsyndrome.ch

USA Links

**American Heart Association - www.americanheart.org

American College of Cardiology www.acc.org

ARVD Centre (John Hopkins Hospital) www.arvd.com

Cardioscource www.cardiosource.com

Canadian Adult Congenital Heart Network www.cachnet.org

CARE (Cardiac Arrhythmias research and Education Foundation www.longqt.org

**Cleveland Clinic www.cleveland clinic.org

Cove Point Foundation - Congenital Heart Disease www.pted.org

FDA Food and Drug Administration( About AEDs) www.fda.govhearthealth

**Heart Rhythm Foundation www.heartrhythmfoundation.org

**Heart Rhythm Society www.hrsonline.org

**Heartscreen America www.heartscreenamerica.com

**Hypertrophic Cardiomyopathy Association (U.S.A) www.4hcm.org

**Parent Heart Watch www.parentheartwatch.org

**Long QT www.long-qt-syndrome.com

**SADS Foundation www.sads.org

**Sudden Cardiac Arrest Association www.early-defib.org

**Cardiac Arrest Research and Education Foundation (CARE) www.longqt.org

**Web Med www.webmd.com

 

**Parent sites in USA

Anthony Bates Foundation www.anthonybates.org

Greg Moyer Defibrillator Fund www.gregaed.org

In Memory of Jimmy and Chrissie Brackett Always in my heart www.inmemoryofmykids.com

Ken Heart Foundation www.kenheart.org

Matthew Krug Foundation www.matthewkrugfoundation.org

Nick of Time Foundation www.nickoftimefoundation.org

Parent Heart Watch www.parentheartwatch.org

Run For Sarah www.runforsarah.com

Saving Young Hearts www.savingyounghearts.org

Take It To Heart www.takeittoheart.org

The Robie Foundation www.therobiefoundation.com